I would like to apologise because my blogs have been irregular recently due to having so much going on. It has been quite a summer.
I wanted to kick start the blogs again with a reminder of why I do it. I was diagnosed almost eleven years ago At that time I found stories of people with Parkinson’s to be daunting and intimidating. This was largely because the stories were of brave people fighting adversity and not from those who were muddling on doing okay. So my blog is to show as well as Parkinson’s I have a life. Also there will be various gratuitous posting of cat pictures as I found that people get bored of my words long before losing interest in pictures of my cat Tom.
As I was saying it has been quite a summer. Highs such as going to London with my daughter . Truth is I came into this summer jaded. My employer changed my job changed, some of my family were challenged by their own issues and my medication needed changing. Agreeing and carrying out changes to my medication were cumbersome and slow with less co-ordination between my Consultant , Parkinson’s Nurse and General Practitioner than there should have been. All of this took it’s toll.
Despite this my summer was packed with many triumphs. I mentioned the London trip with my daughter. Although we marvelled at the sight of the magnificent but impatient mass queueing behaviour outside the Natural History Museum we didn’t see the wonders inside. The butterfly exhibition on the gardens outside was excellent though.Tate Britain full of a vast heritage of English Art had much to see. Highlights often included my children such as a lovely day out with Shannon and Ilona at Heligan Gardens.
So many highlights including meeting Heidi Reynolds of the Facebook Group Start living today PD. Not just a meeting of minds but also a meeting of sense of humours. A brewery tour at Skinners brewery provided a good evening and a team challenge in a puzzle room with colleagues led to a great afternoon. So many good things.
I also released my secondbook on Amazonwhich despite its cheapness is not selling so please buy a copy from the link to Amazon below.
Time for a gratuitous cat picture.
As usual life added a few bumps to the road. Having to replace my car engine was no fun, neither was telling my neighbour about his cat being killed by a dog. Negative events that could happen to any of us.
At the start of the blog I mentioned changing my medication. One change is an extra drug from a research trial that increases the amount of co-beneldopa . I have been taking opicapone for just over a month and it is successfully eliminating my offtime between doses of Madopar(that supplies co-beneldopa making life easier.
That’s where I ll end. Thank you for reading this catch up