Just thinking about my last week and the last two posts I made about sleep and about mental health.One thing does strike me from what others have said to me.(mainly said personally not been put online). We often don’t follow basic adviice. Sleep for example we need to get the best sleep we can but because basic sleep hygiene doesn’t fix the issue we give up on the advice and say it doesn’t work.
The basic sleep hygiene advice doesn’t “fix” my sleep issues but if I keep a diary then everytime I follow basic advice it improves. So I reccommend for anyone in doubt try the advice available to us. A link to Parkinsons Uk website is below
Please have a look at the advice they give and try it. If you doubt its impact keep a diary but give it a chance, as couple of days is not enough to change ingrained habits. Discuss any results with a medical professional ie Parkinson’s Nurse or GP if you still have issues. This may not be an answer to everyone but it will help most.
Last Sunday I awoke to a very irritated and sore left eye. It became more irritated as the day went on with the bright sunshine making it worse. By afternoon my eye had startedto flood with tears at regular intervals. I had to drive home on a 15 minute drive but after 500yards sat waiting for 20 minutes for my eye to calm down. I stopped driving for the next few days.
The irritation in my eye affected my sleep and arrived at work more tired than usual on Monday morning with an eye flooding with tears after no more than a few minutes using the computer. My productivity at work was negligible and I went to the opticians who referred me to the local hospital eye unit. On Wednesday at the hospital I was given eye drops and now (Saturday) my eye is feeling almost normal although I still have drops to use.
However the effect on my life this week has been huge. I am single and have a daughter staying with me for half the week. I work full time,. I have two older daughters.living in the area who sometimes need support. Not being able to drive removes travel to work arrangements as well as casting uncertainty on how I carry out my family role. I have problems with how to get to appointments. Eyedrops was also a challenge. Two sets of eyedrops one three times a day and the other every two hours so about 11 times a day. I am extremely sensitive about my eyes .
So several problems and here is the link to mental health week. I needed help but asking is so difficult. Nowadays being single I have no immediate help. I need help more regularly than previously (ie when I have car trouble) and everyone has busy lives. When your life is a challenge then extra challenges can be too much.
So a big thank you to my separated wife Liz not only for flexibility with who was transporting our daughter but for lifts to work (she is also a colleague) but also for taking a morning off to take me to the hospital eye unit. She made my week possible.
Eyedrops another problem. Could I put them in successfully? I didn’t know how I would manage as I always have been oversensitive about my eyes. Shaky hand and ee that wanted to close but with the regularity of drops needed it wasn’t possible to get someone else to do it. So I manage but sometimes there is a bit of wastage when I miss. I asked the Dr for any tips on avoiding a repeat occurrence and he advised just wiping any dry skin buiding up around the lids with a wet flannel twice a day.
Thinking about the future, transport could be a problem any time and it is best to be prepared. So I intend to make sure I am aware of available public transport as well as making sure friends realise how much help they give. Having a plan B helps and takes some anxiety out of life,
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