Hot Weather and Parkinson’s

Coping with the heat and Parkinson’s

I have heard about several people with Parkinson’s struggling with the heat so I have done some digging and this is what I have found.
There is a lot of agreement Parkinson’s can be worse in a hotspell. Some attribute this to less effective meds. I cannot say whether that is true. What I do know is that dehydration can lead to constipation. Constipation can affect the way Parkinsons meds are absorbed. So it makes sense to ensure a good fluid intake. Ensuring good levels of hydation will also address the feeling unwell that can happen to anyone dehydrated. Water is the best fluid to drink better than tea,coffee or fizzy drinks.
Hot weather affects us in more than one way.Another effect is night time temperatures affecting sleeping. It is a knwn fact our Parkinson’s can deteriorate with lack of sleep. Feeling too hot can wake you up and prevent you getting back to sleep.Lack of sleep can make symptoms worse. Heat in daytime can increase any daytime drowsiness felt.
It is generally accepted that hot weather can make life tougher for those with a health condition what is not so clear is what the effects are. So please make comments here with any thoughts. Any ideas on mitigating the effects of the heat would be most welcome.

Intense-Rapper Required

For a while now I have wanted to write a song. Intense is a rap but I can’t rap so I seek someone with the ability and means to record it. Any rappers out there? If so please comment and get in touch.

 

Intense

MC Parkinsonspoet in the house y’all

 

Intense, immense get off the fence

perceive believe, can you conceive

Rejoice your choice hear my voice

 

This is my rap These are my words

This  my story it will be heard

A message across the nation

Take you to my destination

 

I may  shake  may have a tremor

I don’t quake  am strong at the core

Not nervous see past appearance

Hear me observe my coherence

 

I am a man not a condition

I have a heart no supposition

I have identity personality

I am human can you see me

 

Intense, immense get off the fence

perceive believe, can you conceive

Rejoice your choice hear my voice

 

This is my rap These are my words

This  my story it will be heard

A message across the nation

Take you to my destination

 

I have no fear feel no despair

I have a future this I declare

As my body will be in decline

Mind inside will always be mine

 

So no pity and no more remorse

Understanding welcome of course

Show me love sow me some respect

See me I ask and I expect

 

Intense, immense get off the fence

perceive believe, can you conceive

Rejoice your choice hear my voice

 

This is my rap These are my words

This  my story it will be heard

A message across the nation

Take you to my destination

 

Recognise me and my diversity

In life we all face some adversity

Would you be labelled or define

Yourself by lows on your timeline

 

See my capabilities see my talents

Value my gifts and be more gallant

Not a book no title on the cover

More an onion layers to uncover

 

Intense, immense get off the fence

perceive believe, can you conceive

Rejoice your choice hear my voice

 

This is my rap These are my words

This  my story it will be heard

A message across the nation

Take you to my destination

 

Dialogue with Consultants

I have recently been on the Google Hang out witth the Young Parkinson’s Netwok and as usual there was some very positive discussion. I agreed to leave a post about something I mentioned on the Network page.This blog is an expansion of that writing. It is about taking control. I was diagnosed 9.5 years ago and have seen three consultants. Three different people with different views and ways of doing things.One thing we have always had is a dialogue. It is my body and my life so I expect an input.
We all have varying levels of knowledge about our condition but you do’t have to be a medical expert tohave an opinion.Before you see the consultant think about what you want? Think about what you need to live your life. Set the goals and get them to advise and explain what the options are. The more you have an imput the more they will expect you to want an input.If there are any issues it is worth keeping a diary of whatever the issue is.
While we are on this subject I will mention an NHS initiative.
The Expert Patients Programme(in the UK). The Expert Patients Programme (EPP) is a self-management programme for people who are living with a chronic (long-term) condition. The aim is to support people who have a chronic condition by: increasing their confidence. improving their quality of life.I have nottried this programme but think it is well worth looking into.Now I don’t know if this is proven but it is said involving the patient leads to better outcomes than an inform
So please let me know your views and experiences comments are extremely welcome

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